"Annabelle and I thank you all for all your donations and hard work to save her. Annabelle see’s herself and her grandma on TV or pictures on canisters everywhere we go. I wonder what she thinks about this. Maybe its normal?"--From the online journal of Christine Barrietua, Annabelle's Grandma -- read more.
Annabelle is two years old and lives in Boise, Idaho. She has been diagnosed with MPS III – Sanfilippo Syndrome, a rare genetic disorder which makes Annabelle’s body unable to produce a specific enzyme that breaks down complex carbohydrates. This causes molecular waste to build up in every cell of her body, producing many terrible symptoms including mental retardation, loss of speech, hearing, sight, movement and eventually death around the age of puberty. This rapid and progressive disorder will cause deteriorization to her entire body: her heart, brain, bones, joints, respiratory and central nervous systems. Read more...
Here’s how you can help:
• Pass this information to others--send a link to this website to ten of your friends and ask them to do the same.
• Make a secure credit card donation by clicking on the "donate now" heart above. It takes just a moment to complete.
• Make out a check to ‘COTA for Annabelle G.’ and deposit at any Wells Fargo Bank account #1100417052 anywhere in the nation.
• Send a check to Children’s Organ Transplant Association, 2501 COTA Dr., Bloomington, IN 47403. Questions contact COTA at 1-800-366-2682. Make the check out to COTA for Annabelle G.
Grandma's Journal.
